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MISSION AND GOALS
- Mission
The mission of the Missouri Kidney Program (MoKP) is to help to meet the educational needs,
and to promote the physical and mental well-being of eligible Missouri residents with
Chronic Kidney Disease (CKD).
- Goals
In order to accomplish this mission, the Missouri Kidney Program is committed
to the following goals:
- To advocate for policies that ensure no Missourian is denied treatment for kidney failure because of inability to pay.
- To provide financial help to eligible Missourians to defray the in-direct medical expenses related to CKD Stage 5.
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Benefits range from medications, transportation, and insurance premiums assistance depending on available funding.
- To provide and support the CKD education of Missourians:
- To promote public awareness and prevention of CKD.
- To help select an appropriate treatment for kidney failure and to encourage active participation in their medical care.
- To provide continuing education seminars to the professional disciplines working with the CKD population.
- To increase public awareness of the need for organ donation, and to encourage kidney donations for transplantation.
- To collaborate with other organizations on efforts to prevent kidney disease.
- To promote efforts to delay or avoid the onset of kidney failure for those who have CKD which will reduce associated cost of care.
- To foster the exchange of medical, technical and administrative information among programs and professionals who treat people with CKD.
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HISTORY AND LEGISLATIVE AUTHORITY
In March 1968, the Missouri Legislature appropriated $100,000 to the University
of Missouri Board of Curators for a state kidney program to assist Missouri's
end-stage renal disease (ESRD) population with life-sustaining dialysis. The
Missouri Regional Medical Program (MoRMP), a federally funded program administratively
attached to the University of Missouri, was chosen by the Missouri Legislature
to develop the state renal disease program. The MoRMP agreed to absorb the administrative
costs so all state dollars could be targeted for direct patient care.
Five potential sites were visited by members of the MoRMP Regional Advisory
Group, and two awards were made to Washington University-St. Louis and Kansas
City General Hospital-Kansas City. During FY69, 17 Missouri ESRD patients received
state and federal assistance for dialysis at these two facilities.
In 1973, the United States Congress passed Public Law No. 92-603, extending
Medicare coverage to ESRD patients after a three-month waiting period. This
made treatment available to nearly everyone and has vastly increased the number
of ESRD patients receiving therapy. Also, in 1976 the Regional Medical Programs
were phased out, making it necessary to identify another organization to administer
the program. The Missouri Kidney Program (MoKP) was established and an advisory
council was formed to provide oversight as the MoRMP Regional Advisory Group
had done in the past.
Since 1977, the Missouri Kidney Program also has sponsored cost-containment
research and demonstration projects aimed at increasing the cost-effectiveness
of patient care, and in 1983 a state-wide pre-dialysis education program was
begun. These unique programs serve as national models for other state kidney
programs.
Annual legislative appropriations have continued, and in FY2008 net funding
was $3,896,271. The Missouri Kidney Program provided assistance to 2,691 ESRD
patients through contracts with 147 participating facilities.
ADVISORY COUNCIL
The Missouri Kidney Program Advisory Council is a multi-disciplinary body appointed
by the Dean of the University of Missouri-Columbia School of Medicine. Council
membership includes individuals with appropriate knowledge and experience representing
interested agencies and health care disciplines. Every effort is made to provide
diverse disciplinary and geographic representation. In addition, one member
each of the Missouri House of Representatives and Senate is appointed to the
Council.
The Advisory Council meets at least three times per year and performs the following
basic functions:
- Provides general program direction and oversight, including the development
of program policies, priorities and initiatives, in collaboration with the
Missouri Kidney Program staff. The Dean of the Medical School retains final
policy-making authority.
- Collaborates with the Missouri Kidney Program staff and Dean's Office to
develop the annual legislative funding request.
- Reviews requests from ESRD facilities for annual patient assistance awards
subsequent to site visits and/or subcommittee review. Reviews subcommittee
funding recommendations and makes final recommendations to the Missouri Kidney
Program.
- Reviews and approves cost-containment research funding proposals subsequent
to technical review committee evaluation and recommendations.
- Assists the Dean with evaluation of program and administrative effectiveness,
including recruitment and evaluation of the Missouri Kidney Program director.
- Assists the Missouri Kidney Program director with legislative advocacy and
education efforts.
- Between Advisory Council meetings the Council's executive committee provides
the primary liaison with the Missouri Kidney Program staff, consulting on
managerial and policy issues. Current members of the executive committee are
Dr. Venkataraman Ramachandran,
Assistant Professor of Surgery at the University of Missouri School of Medicine
and Dr. Michael Young, a nephrologist in private practice in Jefferson City and James Campbell, PhD
of University of Missouri School of Family and Community Medicine.
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Advisory Council Members
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Bridget Andrews, MSW, LCSW
Social Worker
St. Louis, Missouri
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Bill Buck
Patient Advocate
Grain Valley, MO
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Christy Duffel, MSW, LCSW
Social Worker
Ozarks Dialysis Services, Springfield
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Cheryl Cress
Clinical Nurse Coordinator
Washington University, St. Louis
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Jane Hafner
Nurse Administrator
Nxt Stage, Kansas City
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Laura E. Hesemann, MD, MSCI
Assistant Professor of Clinical Child Health & Medicine
University of Missouri, Columbia
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Frank O'Brien, MBBCh, MRCPI
Assistant Professor of Medicine, Renal Division
Washington University in St. Louis
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Carol Thoma-Perry, MSW, LCSW
Social Worker
DaVita, Kansas City
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Patty Parker
Administrator
Branson, Missouri
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Kelli Small
Patient Advocate
California, Missouri
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Mark Wakefield, MD
Chief, Division of Urology
Program Director, Urology Residency Program
Associate Professor of Surgery/Urology
University of Missouri, Columbia
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Preethi Yerram, MD
Nephrologist
University of Missouri, Columbia
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Marie Philipneri, MD, PhD
Professor of Internal Medicine/Nephrology
Saint Louis University, Saint Louis
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MoKP Advisory Council Partners / Non-Voting Members
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James Campbell
Emeritus Member
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Bill Morrissey
Kilgore's Medical Pharmacy
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Kathleen Davis
National Kidney Foundation
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Debbie Ulm
Network 12
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Marla Lampp
School of Medicine, University of Missouri
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J. Eggleston
House Representative
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ADMINISTRATION
The Missouri Kidney Program is administered by a director appointed by the Dean
of the University of Missouri School of Medicine, in consultation
with the Advisory Council. The director is responsible for hiring and supervising
the Missouri Kidney Program staff and for implementing the goals, objectives
and policies of the program as authorized by the Missouri Legislature, the Dean,
and the Advisory Council.
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